Getting on for another year!

August 24, 2012
Well it's now approaching the second anniversary of Sadie's death. Last year the weeks preceding this date were gruelling as I relived everything that Sadie went through in her last weeks.  This year I feel more at peace. Not that I will ever be at peace with what happened to Sadie, but I have finally dealt with a lot of the trauma that accompanied our precious daughter's short life.  I have learnt, with help of a fabulous counsellor, that my grief is accompanied by trauma and I realised that I needed to face the trauma and talk about it and acknowledge that even though this is negative,it isn't a reflection of negativity towards Sadie's life.  I hope that makes sense!  This has been a huge help.

I also learnt over the course of this year, as I progressed to living a full life again, that the grief hits in many ways and ca become overwhelming - often the smallest of issues can be so upsetting and I have learnt to take those feelings away and recognise them, examine them and then move on more.  One thing above all has shone out to me as I face the realities of losing Sadie and the changes that have come about in our lives - I am a very real person.  I dislike disguising the truth or hiding facts.  There is a time and a place, but the need to be genuine and particularly in talking about Sadie, is so important to me.  The things I hold dearest to me is her memory and it means more to me that I can ever say.  I know Drew feels the same. We shared Sadie with our friends, family and the world really, because we love her and are so extremely proud of her.  I have been desperately anxious that her memory must not die too.

Inevitably, some people on the peripheral edge of our lives do momentarily forget we had Sadie and that can hurt.  Needless to say that embarrassment obviously follows as we would always correct people.  I sometimes wish there was a way of showing that Sadie is always in my heart and on my mind and hearing her name is wonderful to me.

It's been a tough year as I learnt to wobble my way through getting back on track.  Its been a really great year too and we are blessed.  I have had ups and downs emotionally as I attempted to accept Sadie's death and would keep taking two steps forward and a step or two backwards.  I don't honestly know where I am up to right now.  All I know is that I have peace in my heart most days, I hold on tight to my faith and Sadie's memory and I miss her like crazy.  She is always here in our hearts and very much a part of our family. Always.

During this year I have tried to remain outwardly composed and to reflect the joy we also feel. I would never wish to dishonour Sadie's memory either.  However, I have dipped occassionally and I am grateful to those close to us who have offered support and forgiven my emotional judgement.  We are so grateful for the way so many people still love Sadie, remember her and support us. 

Recently, Drew's Nanna passed away. Sadie and Pat's Great Grandmother. Naturally the family was and is very sad and I very much feel for my father and mother in law as I know they are hurting with grief.  The funeral was the first since Sadie's for Drew and me and we faced it with additional dread for that reason.  I did not want my grief for Sadie to take away from me paying my respects to Drew's Nanna, Lilian and so I jogged to Sadie's grave the morning of the funeral to try to deal with some of my feelings.  Lilian's funeral was of course for Lilian and to remember her and I did not want my grief over Sadie and the memories of her funeral to pull me away from supporting Drew. I'm sorry to say though that the memories of Sadie's funeral and death did overwhelm me and I was upset to realise that I was struggling to be the support to Drew that he needed. 

Life is very full.  Pat is full of energy and is amazingly sunny.  I work 4 days a week and mainly I really enjoy that.  I go out with friends, take holidays away and share a fabulous marriage with Drew.  I have started to run and this gives me a new level of peace as I feel close to Sadie when I run.

I know the anniversary on10/9 will be hard and Drew and I have taken time off work in readiness for that.  We will take a trip to anglesey with Pat too.

 
 

A holiday and some more counselling...

June 11, 2012
Well I am more or less recovered from the car accident now although just some aches and pains and wot-not.  We're still just so relieved that Pat is fine.  I've been back in work a little and we also went to Spain for a holiday. The holiday was amazing and we had a great time. This was the first time Pat had flown and our first overseas trip in many years, as Sadie was not able to travel at all due to the nature of Edwards Syndrome. We were very excited and I was planning and looking forward ...
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Life is Very Busy

May 11, 2012
Well its been a while since I last posted and generally that is a good sign because life is moving fast and I'm just getting on with it an managing the grief.

As I write this, I am in bed because Drew, Pat and I were involved in a car accident last Saturday on the M1, whena car hit us in the outside lane.  I am so relieved that Pat and Drew are unhurt, but I was actually leaning round to check on Pat in the back seat at the time and soI was thrown about and sustained head injuries, internal br...
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Mothers Day

March 18, 2012
Missed Sadie so much today.  I had thought today may not be so bad but when I sat for a moment on my own I realised how sad I felt and just could have curled up and spent the day crying.  Generally though, after a good cry I can get on with the rest of the day.  Drew had purposely kept the plans minimal so we just headed offfor a walk with Pat.  We had a lovely day, but I have had a heavier heart all day. I have wondered about my other bereaved parent friends  and hope their days have been pe...
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That impossible question

March 15, 2012
Time and again I ask myself how to handle the questionof how many children I have and I often find myself avoiding that conversation topic - trying to divert someone I have just met from talking kids.  This is not great when I am trying to build relationships as part of my job, but what potenial client wants to hear me say that I have 2 children, Sadie and Pat, but sadly Sadie died 18 months ago??? Naturally I like to help them out by saying something positive or moving the conversation forwa...
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Two Trips to Francis House - part 2

February 11, 2012
Finally a moment to write....

So the second trip to FH was arranged so that I could talk to someone in the bereavement team. Thats a huge help as it enabled me to talk about the grief as it is so unrelenting and it really helpsto talk to someone who can help me understand this better.  Whilst I was there I learnt that a little girl called Laura who had been staying at Francis House for end of life care whilst we were there had now died. Mostly children stay at FH for a day or so of respite and...
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Two Trips to Francis House

February 6, 2012
Pat and I went to Francis House a couple of weeks ago now. I like to visit from time to time for support from the berevament team and to remember the time we spent there for respite and care with Sadie.  It makes it all seem very real. I mean, yes, everyday we wake up and our daughter is dead and that knowledge is there constantly but its something you can't repeatedly and contantly examine every waking moment as life needs to go on.  But when I visit FH, I remember how truly awful it is that...
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A funny old day

January 25, 2012
Well today I went down south for a team meeting.  We flew down, which was a bit strange for me.  Hard to explain, but I guess a combo of things... I've not flown since before being pregnant with Sadie and I felt flustered (although I hope I hod it relatively well). Also, just the feeling again of things being at 'normal pace' which seems poles apart from our true normality.  I still sometimes feel like I have been plunged back into a parallel universe and inside I am a grieving mum, but my ex...
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Busy Busy Busy!!!

January 23, 2012
Life is busy again and we're getting out as usual.  I can't say I fire on all cylinders since losing Sadie but I am getting there. 

I am still in a temporary contact work-wise and hoping toland something more permanent, although to be honest I'd love moretime with Pat and to spend more time doing work with SOFT and helpingother bereaved parents but we just don't have the time and cannot afford for me to be out of work so all in good time I guess.

Pat is growing up so fast and is 11months now. ...
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Happy New Year!

January 2, 2012
Drew and I had a lovely new year.  Last new year had been tough because the memory of new year's eve 2009 was hideous and vivid as we were told that Sadie was going to die and that there was nothing that could be done.  It was the most painful day of my life. So, I hadn't held any hope for this year, but Drew went to a huge effort and got busy preparing lovely food and keeping us both topped up with champagne as we reminisced in the year gone by and looked forward to the year ahead with excit...
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Below are 2 articles I have written for the SOFT Newlsetter.  SOFT is a charity Support Organisation for Families of Trisomy. 

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Article 2.docx Article 2.docx
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