Just breathe in and out

September 5, 2011
Drew and I have heavy hearts at the moment.  Just lots of sadness and lots of memories of this time last year.  We are blessed with such happy memories of Sadie - so many of them and they will always bring us happiness and comfort.  Right now though, its about getting through this period of grief.  Sadie was so strong and dignified and we want to honour her by being just as she was. 

This weekend Drew and I took Pat out for walks as always.  We always feel rejuvenated after a walk and its so beautiful this time of year.  Pat loves looking at animals and trees as well as cars and trucks and smiling at anyone we meet.  He brings us so much happiness and also keeps our memories of Sadie clear because she too loved nature.  She couldn't be outdoors too much with the brightness affecting her eyes, but she loved to be walked around the garden late in the day and look at the trees and touch our old oak tree.  She also loved walks in her pram.

I am off to Francis House this afternoon to meet my friend on the bereavement team and also to visit the chapel there. There is a memory book in the chapel where families can keep a page with anything they like on it in memory of their child.  In a year I still have been unable to do this, but I have made a small start and will place Sadie's memory page there today and add to it and change it over time.  I have written lots about Sadie in notes in various forms over the last year or so but I wrote a poem recently that I will share on the memory page and I will share here too.

This week hurts so much as we remember Sadie's pain and what life was like.  We are so glad for the time Sadie shared with us and keeping her memory alive is important to us.  Right now we just have to get through these darker days in the grief and as we do so, we are having to hibernate a bit.  I am amazed that Drew is so able to go to work and just get on with things amidst all he is feeling.  I am proud of him.  He is strong and resilient.  Drew was so close to Sadie.  No father and daughter were ever closer.

My poem in Sadie's memory - Always My Baby....
I feel you sleeping softly in my arms, up on my chest
I hold you tight and smell your hair, the moments I loved best.
Though you're not here any more, haven't been for so much time,
You're still here in my arms, up on my chest; you're always mine
Oh precious, beautiful baby girl, the loss of you so hard to bear
Its hard to be your mummy and give you my love when you're not there
But you'll always be my baby, no less so than when you were here
If I close my eyes, you're in my arms and I will always hold you near 
 

The approaching anniversary or 'angelversary' as they're known

September 2, 2011
We continue to find flash backs to last year.  I am amazed at the things that happened and I wonder now how we managed to stay awake night after night looking after Sadie and also how we went on to bring home morphine and administer that regularly to our perfect baby along with other strong drugs like midazolam.  I admire parents who have to do such things for a length of time.  I know that although it is wonderful to have your child, regardless of the challenges they face, it is hard to adju...
Continue reading...
 

Thinking of one year ago

August 20, 2011
It feels like we are reliving the last few weeks of Sadie's life.  She was really poorly last August and we started to rely more on Francis House for help.  Sadie began to need a feeding tube again as she could not drink her milk without becoming too tired to get enough.  The past few weeks have felt really hard and its clear that the build up to the anniversary will be tougher than I had imagined. It is clear that the grief and sadness will always be there and some days and weeks we manage i...
Continue reading...
 

Just can't write these days!

July 4, 2011
Well for various reasons I just don't seem to blog these days.  The main reason is that I have so little time for it, but I also feel that I only think of blogging when I feel low with grief and I don't want this to be so very negative.  Another reason is that I find myself in some very hard circumstances each week that I work so hard to deal with and keep a smile on my face if possible, so I feel like then blogging about it would be undoing that in some way.  People try so hard to be underst...
Continue reading...
 

Strange time

May 20, 2011
I had a good week and Pat an dI have been out a fair bit at post-natal group and seeing some friends and family.  Its been an easier week grief-wise and although it never leaves me flly I have had some laughs and even went out to dinner at a friend's with a few of my girlfriends last night which was really nice.  I'm feeling a bit lower today so Pat and I went out briefly with my mum but we're having a sofa afternoon now so I can recharge.  I am trying to fight the sadness but I think I may h...
Continue reading...
 

Quick Blog

May 16, 2011
Pat is having a nap so I am quickly updating my blog.

Had a lovely weekend... Seen a few friends and family, went to the gym (!) and also been for some walks. Pat's Nana comes to sit for him for a couple of hours most Sunday afternoons whilst Drew and I go for a long walk to blow the cobwebs away.  Drew and I always have our best talks when we walk.  I always feel better for them.  Pat gets to spend time with his Nana.  His grandparents love sitting for Pat and he really enjoys being with them...
Continue reading...
 

Update 10/05/11

May 10, 2011
Its hard to believe that 8 months has passed since Sadie died.  So much has happened and yet it still feels like yesterday.  Today has hit me hard possibly because I have been doing quite well in recent weeks.  I miss Sadie so much and I feel overwhelmed by how sad I feel trying to accept she has gone.  Sadie was such a happy, bright little girl.  yes, she was had severe disabilities and had her struggles because of this, but she was so brave and she enjoyed the life that she had. She was suc...
Continue reading...
 

Update 09/05/11

May 9, 2011
Well its been a while since my last post as I have been so busy.  This site-builder doesn't allow me to paste text, so I have to quickly type my blog and save it there and then, which isn't ideal.

So much has happened these past few weeks.  The grief has been very hard and I am realising that as I have been told, we have to learn to live with the grief rather than expect it to fade.  It takes a bit of managing!  Some days, without warning, I plummet to depths of sadness, disbelief and despair ...
Continue reading...
 

Quick Update

April 11, 2011
I am so busy these days as any mum is.  I just thought I'd updtae quickly to say I am doing OK.  Mothers' Day was a tough one this year.  The day itself was fine, but I found the approach difficult - just being aware that it was coming up.  I am still working hard with the balance of being in the depths of grief and yet being overjoyed with Pat,  Pat is truly amazing.  The grief is still so raw though and there appears to be no way round it.  I wish I had time to post more, but I will try to ...
Continue reading...
 

A tough week

March 26, 2011
Well for some reason I have found this week fairly hard emotionally.  I have been out with Pat (still can'tdrive after op) in his pram for walks, which has been lovely and also we have seen friends and family, which has also been really nice.  My friend, Vicky has picked me up and taken Pat and me to Amy's a few times now, which has been a great help for me.

I think that the more I do get out, the more that the grief comes out too.  It will take time I think to get through it. I find I can't c...
Continue reading...
 

Below are 2 articles I have written for the SOFT Newlsetter.  SOFT is a charity Support Organisation for Families of Trisomy. 

Article 1.docx Article 1.docx
Size : 0.016 Kb
Type : docx
Article 2.docx Article 2.docx
Size : 0.015 Kb
Type : docx

Make a free website with Yola