A good day

March 16, 2011

Pat is doing very well and he is just gorgous in every way.  He is starting to smile a little and is also enjoying trying to grab his toys.  He can lift his head easily and so he spends quite a bit of time on his tummy on how play mat now. 

Earlier this week Pat and I ventured out alone for the first time.  Having had a csection, I am not allowed to drive for 2 more weeks, so I took Pat in his pram to see my sister in law, Pat's Auntie Clare.  It felt strange being out on our own and also walking the route that Sadie and I so often walked, but it felt really good too.  The sun shone down on us as Pat slept and I felt Sadie was close by.

This morning Pat and I went for a nice walk and again took a route which Sadie and I used to walk regularly when she was well enough.  It felt so good to be out in the spring time and I felt full of hope for the year ahead.  We have so much to look forward to and it feels strange to be able to make plans these days.  We have some great holidays planned and lots of fun.

I am going to be starting post natal class on 19th April. I am a bit nervous but mainly I just feel excited to get to enjoy these things with Pat, which Sadie and I could never really do.

I have started planning Pat's baptism and I am really looking forward to it.  I desperately hope to slim down before then as I feel huge after having 2 sections in 14 months but weight loss or not I will have a wonderful day and will enjoyformally celebrating Pat's birth and bringing him into the church that has come to mean so very much to us.

I still haven't been able to go to church as last time I wept buckets but Drew and I plan to attend as soon as we can.  Sadie was welcomed into the Knutsford Methodist Church last year (you can search for the service recording on their website and listen to the lovely words and prayers by Paul Wilson as he baptised Sadie).  Holding Pat's baptism there is going to be very emotional for us but also a huge celebration.  It means a lot to us to know that Pat is a part of the church.  Rev Wilson has already met Pat and prayed for him, which was very special.

Our health visitor, Hilary came over today and weighed Pat.  He is 9lb2.5oz.  He is gaining over a pound a week at the moment, so I feel very happy to know he is doing well as I think weight gain is always a great indicator.

As I start to recover and become more mobile I am really looking forward to all the things Pat and I will enjoy together.  There will be no stopping us.

Our grief for Sadie is still raw and acute and hits us hard sometimes.  It knocked me for six on Sunday and I couldn't do a thing but cry and cry.  Its more manageable though.  I know its there and no matter how happy I feel, the grief has to come out too.  It is still so early and we will always feel sadness for losing Sadie.  The grief is completely separate to how we feel about Pat or about anything else.  Its just a part of life right now.

On the whole we are doing great.  Life feels good right now and there is so much we have to enjoy and cherish.

 

Enjoying Pat and Missing Sadie

March 2, 2011
Just a quick update to say Pat is doing very well.  He is absolutely brilliant and we feel so lucky to have him.  He's full of personality and gorgeous too.  So many people have sent lovely cards and messages and we've been amazed by the lovely, kind gifts we've been sent from so many people for Pat.

Missing Sadie doesn't change. Its fabulous having such immense joy back in our lives but the pain of losing Sadie is overwhelming at times and it is all I can do to hold those emotions back until ...
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Sadie became a big sister

February 23, 2011
On 17/02/2011 Patrick Richard Collins was born by CSection weighing 6lb10oz.  Pat is absolutely gorgeous and we are so thrilled to have him.  We feel utterly blessed to have had 2 beautiful babies and although Sadie is in Heaven we know she is watching over Pat.

Being pregnant with Pat was truly terrifying.  I tried my best to relax and enjoy it, but we were so afraid to bring another baby into the world but we are so happy to have Pat here.  As we work our way through our grief we know Pat wi...
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15/02/11 Quick Update

February 15, 2011
Well it's 5.20pm and its fair to say the nerves are getting to Drew and me. Drew came home quite early from work as he just cannot concentrate now.  We are both hugely anxious and cannot help worrying about the baby being poorly in some way.  There are so many fears attached to that as we know now just how hard it is to have a child who is living with a disability, both from living through that with Sadie and from knowing parents and their children who are living with that reality.  We are sc...
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07/02/11

February 7, 2011
I seem to become increasingly anxious.  Anxiety and intense grief do battle in my head and heart constantly.  I have only 10 days until baby will be here, but I am finding the terror hard to bear.

Poor Drew is having to put up with a lot and is doing his best to keep me calm whilst dealing with his own grief and worries. For us, our experience of parenting has always been tough. Sadie was wonderful and we enjoyed every moment with her, but it was so hard too.  It was very intense - always know...
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03/02/11

February 3, 2011
Nothing much to update really!  I've been out a little in the last 2 weeks but now just wanting to stay at home. The anxiety and grief are very hard to handle together and I am left with very low resources and I am very emotional.  I think the hormones add to this.

My bump is getting huge and I am 37 weeks (full term) tomorrow.  Our little boy will be here 2 weeks today and I will just be so glad to know he is safe and healthy and I can't wait to give him lots of cuddles.  Being pregnant whils...
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23/01/11 - Getting to Grips

January 23, 2011
Well I've not posted for a little while because I was very low, then I got the horrible noro virus and then last week I stayed at my parents' house as ours was being decorated and I wanted to steer away from paint fumes etc...

These past few days I have realised I am in a stronger place again.  I still feel the sadness and cry for Sadie frequently, but it feels like some of the weight has lifted.  Who know if this is a temporary feeling or if its the start of me finding some peace.  Only time ...
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23/01/11 - Getting to Grips

January 23, 2011
Well I've not posted for a little while because I was very low, then I got the horrible noro virus and then last week I stayed at my parents' house as ours was being decorated and I wanted to steer away from paint fumes etc...

These past few days I have realised I am in a stronger place again.  I still feel the sadness and cry for Sadie frequently, but it feels like some of the weight has lifted.  Who know if this is a temporary feeling or if its the start of me finding some peace.  Only time ...
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11/01/11 - Tough Times

January 11, 2011

Well I think I had pinned my hopes on it being January and with festivities out of the way I thought I could take a deep breath and start moving on.  Its not quite a simple as that though.  I am trying to get out and we are doing little bits, which is nice, but I have very little strength.  I am finding it hard to keep my emotions in check and spend lots of time crying and generally feeling about the lowest I could have ever imagined.

I saw my GP yesterday and he said there's nothing to be don...


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Happy New Year!

January 3, 2011
Well, we survived the Christmas period and Sadie's first Birthday and I can honestly say I am so glad that its January and there are no majorly difficult dates on the horizon for now.

Christmas was harder that I could have imagined.  The build up of festivities was hard because we just felt so polar opposite to that.  We didn't decorate our house this year.  I normally love doing that and I will again next year.  It just felt wrong.  We're missing Sadie so much and we had so much looked forwar...
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Below are 2 articles I have written for the SOFT Newlsetter.  SOFT is a charity Support Organisation for Families of Trisomy. 

Article 1.docx Article 1.docx
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Article 2.docx Article 2.docx
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